In addition to YACC’s Recover Study, here are some opportunities to use your voice and your experience to help understand, shape, and improve the future of young adult cancer!
Are you conducting a study relevant to young adults dealing with cancer? Please email an image, blurb, relevant links, and registration deadline date to [email protected] before May 31 to be included in the June roundup!
BC Cancer Foundation
Seeking lesbian, gay, bisexual, queer and other non-heterosexual adolescents and young adults with cancer experience in BC who would like to describe their unique perspectives on coming out to their cancer care team.
We’re seeking participants to share their experiences during a 60-90 minute interview. The interviews are part of a PhD research project and information gathered will be used to understand how cancer care professionals can better support their 2S/LGBTQ+ patients.
Email Whitney at [email protected] for more info or to sign up.
University of Calgary
Researchers at the University of Calgary are seeking participants for a study to understand young people’s (aged 18 to 29) relationship with their parents and siblings in the face of blood cancer.
Participants will be asked to participate in an hour-long interview with the researcher virtually via Zoom or at a mutually agreed upon location and time. You will be given the opportunity to recruit your parent(s) and/or sibling(s) to the study. Interviews can occur with or without parent and siblings.
If you are someone who with experience of blood cancer (e.g., leukemia or lymphoma) as an emerging adult (aged 18 to 29) and would like to participate in this study, please email Sandip Dhaliwal (RN, Doctoral Student) at [email protected].
University of Calgary
EXCEL is currently recruiting individuals living with and beyond cancer for a free evidence-based exercise program with spring 2024 classes starting April 9 – June 27, both online and in person.
EXCEL is a Canada-wide research study that offers FREE, 12-week exercise classes. Classes are twice a week for one hour, online through a secure video-conferencing platform, and where possible, in-person. An IN-PERSON class can run in any location pending enough interest.
EXCEL is for anyone with cancer without access to an exercise program. Participants can be
pre-treatment, on treatment, or post-treatment. Instructors are specifically trained to work with individuals with cancer.
To register, please contact [email protected] or click here for more information.
University of Calgary
Researchers at the University of Calgary are asking thyroid cancer survivors from anywhere in Canada and at any point in their journey to answer a few questions about care experiences, treatment satisfaction, and working with your care team.
You can access the survey here.
Not sure if you want to participate? That’s ok! The University of Calgary have a page where you can find out more and get in contact with their research team with any questions you might have.
Find out more information from the University of Calgary here.
Colorectal Cancer Resource & Action Network (CCRAN)
Colorectal Cancer Resource & Action Network (CCRAN) is conducting a pan-tumor biomarker survey in response to the challenges that patients face in accessing timely biomarker testing results and comprehensive genomic profiling (CGP).
Any metastatic (stage IV) /advanced cancer patient or survivor diagnosed in the past 10 years (or their caregiver on their behalf) is eligible to complete this survey. The survey should take approximately 20 minutes to complete. The data gathered through this survey will be used to advocate for timely and equitable access to biomarker testing results, Comprehensive Genomic Profiling and thereby, precision medicines that may help improve patient outcomes in Canada.
Click here to access the survey.
Survey deadline: May 6, 2024
Concordia University
The Childhood Cancer Identity Project (CCHIP) is looking for individuals to participate in an online study looking at how individuals’ view themselves after cancer treatment has ended, which they call cancer identity. The CCHIP also wants to learn if cancer identity relates to mental and physical health among adults with a history of childhood cancer.
Eligible participants are at least 18 years or older, have previously been treated for childhood cancer before the age of 18, currently reside in Canada or the United States, are fluent in reading and writing in English, and have access to a device with WiFi or internet capabilities.
For more information about this study, please contact CCHIP at [email protected] or click here to participate in our eligibility consent and screening.
Memorial University
Memorial University are currently conducting a study to help understand the characteristics, changes, issues, or opportunities in social as well as workplace interactions and conditions of people diagnosed with cancer.
The study is currently looking for participants who have been diagnosed with cancer in the last five years, were under the age of 45 when diagnosed, and have lived and been employed in Newfoundland & Labrador since their diagnosis.
Email [email protected] to learn more!
Memorial University
Sleep, Health & Wellness Lab are a psycho-oncology sleep lab based out of Memorial University of Newfoundland’s psychology department.
Sleep, Health & Wellness Lab have introduced a new research study to treat insomnia in cancer survivors through a smartphone-based app called iCANSleep. The iCANSleep App has been developed in close collaboration with cancer survivors, ensuring its relevance and effectiveness, and includes the core components of cognitive behavioural therapy for insomnia (CBT-I).
The study is currently seeking eligible participants who have ever received a cancer diagnosis, have difficulty falling or staying asleep, are an iPhone user, and live anywhere in Canada.
The study involves a 7-week app-based Cognitive behavioural therapy for insomnia (CBT-I) program, 2 short surveys, and a 30-minute exit interview.
You can learn more about this study by emailing [email protected], visiting www.sleephealthwellnesslab.ca, or by phone at (709) 864-8035
Université de Montréal
Researchers at Université de Montréal are conducting a study to better understand the perspective of young adults affected by blood cancers on what they wanted or needed to learn to be able to cope with consequences of cancer and be more active and confident in their ability to manage their health after active treatment.
Researchers are currently recruiting young adults (ages 18-29), who have received a diagnosis of lymphoma, leukemia or other blood cancers, and who are no longer receiving active treatment for at least a year.
Eligible participants will be invited to a 60-minute interview which can be done in-person or via Zoom.
For any questions or to express your interest, contact Benedicta Hartono at [email protected].
Newfoundland & Labrador Health Services
Researchers at Newfoundland and Labrador Health Services are studying the implementation of
a web-based application for people with breast, colorectal, lymphoma or head and neck cancer.
REACH is an online tool for cancer rehabilitation, designed by clinicians, researchers, and
patients that will screen for cancer-related symptoms and link people to rehabilitation resources to help manage side effects from treatment.
Once registered to use REACH, there is an option to also enroll in the research project associated with this App. The REACH Study will look at de-identified data to study how to improve REACH and invite participants to participate in a survey and/or focus group about their experiences using REACH.
To register, or to find out more information, visit reach.uhn.ca, or email the REACH team at [email protected]
Check out this video for more information about REACH.
Newfoundland & Labrador Health Services
Newfoundland and Labrador Health Services (NLHS) is hoping to recruit three patient partners for a study Examining sexual health in cancer patients, a project being funded by the Health Care Foundation which is a collaboration between NLHS and MUN.
Key goals of this study are to better understand patients’ perspectives on sexual health throughout their cancer journey, to determine when and which provider should discuss sexual health with patients and what parts of sexual health are most important to patients. The study also hopes to better understand how the cancer journey impacts patients’ perception of their gender and sexuality.
Newfoundland & Labrador Health Services are aiming to recruit three patient partners with lived cancer experiences who can join the team for two years of this study. Patient partners can be involved across all stages of the study, but the researchers expect meeting with patient partners 2-3 times a year to gain their input on the project and to review study materials. These meetings could be virtual or in-person, whichever the patient partner prefers.
The study is open to patient partners of any age or gender with diverse cancer experiences and sexual health concerns. Participants would receive an honorarium of $225 per year to recognize the value of their time and lived experience.
For more information about the role of patient partners, please contact: Research Analyst, Hayley Baker, at [email protected]/ 709-752-3519, Research Assistant, Brooklyn Sparkes at [email protected]/ 709-777-9066, or study lead Dr. Cindy Whitten at [email protected]. 709-777-7614.
University of Toronto
Researchers at the University of Toronto are currently recruiting participants for a study to better understand the lives of pediatric cancer patients and their educational experiences in hospital schools.
The study is seeking participants who have experienced any type of cancer from 6 to 19 years old, have completed cancer treatment, have no cancer-related medical treatment in progress, and are now of any age between 18 and 30.
There will be two sessions of participation. Each session will be a one-on-one interview conducted through Zoom and will take one and a half hours to complete. The interviews will involve answering questions and sharing thoughts about experiences of living with pediatric cancer and the story of their education during cancer treatment. The identities of participants will not be revealed to anyone but the principal investigator (Suk Young Hong, Doctoral Student, OISE, University of Toronto.)
If you would like to share your story, please reach out to [email protected]
Western University
Researchers at Western University are conducting a study called “Exploring How Gender-Based Violence Determines Breast Cancer Treatment Trajectories and Health Outcomes for Canadian Women: The START Study.” The study aims to investigate how Canadian women’s relationship and childhood experiences are related to their breast cancer outcomes.
Click here to learn more and sign up.
