In addition to YACC’s Recover Study, here are some opportunities to use your voice and your experience to help understand, shape, and improve the future of young adult cancer!
Are you conducting a study relevant to young adults dealing with cancer? Please email an image, blurb, relevant links, and registration deadline date to [email protected] before December 31 to be included in the January roundup!
Adolescent & Young Adult Priority Setting Partnership
Each year, nearly 9,200 adolescents and young adults (AYAs) aged 15-39 are diagnosed with cancer in Canada. AYAs with cancer have unique medical and psychosocial needs that often go unmet. The AYA Priority Setting Partnership (PSP) is bringing together AYA patients, caregivers, and clinicians to identify the key areas of research that are needed to improve care for AYAs with cancer in Canada. The PSP will result in a list of Top 10 Research Priorities that will guide a new research agenda.
Click here to take the survey!
BC Cancer Foundation
Seeking lesbian, gay, bisexual, queer and other non-heterosexual adolescents and young adults with cancer experience in BC who would like to describe their unique perspectives on coming out to their cancer care team.
We’re seeking participants to share their experiences during a 60-90 minute interview. The interviews are part of a PhD research project and information gathered will be used to understand how cancer care professionals can better support their 2S/LGBTQ+ patients.
Email Whitney at [email protected] for more info or to sign up.
University of Calgary Health and Wellness Lab
The Health and Wellness Lab is conducting a study to understand the relationships between physical activity, body image, and quality of life for young adult (YA) males living with and beyond cancer.
Researchers are recruiting YA males (biological sex or those who identify as males) diagnosed with cancer between the ages of 20-39, able to speak and understand English, be at any stage of treatment (pre-, undergoing, or post-), and be able to participate in an online questionnaire and an interview either online, on the phone, or in-person.
Interested individuals can complete the questionnaire here. (Deadline: December 8, 2023)
University of Calgary
Researchers at the University of Calgary are seeking participants for a study to understand young people’s (aged 18 to 29) relationship with their parents and siblings in the face of blood cancer.
Participants will be asked to participate in an hour-long interview with the researcher virtually via Zoom or at a mutually agreed upon location and time. You will be given the opportunity to recruit your parent(s) and/or sibling(s) to the study. Interviews can occur with or without parent and siblings.
If you are someone who with experience of blood cancer (e.g., leukemia or lymphoma) as an emerging adult (aged 18 to 29) and would like to participate in this study, please email Sandip Dhaliwal (RN, Doctoral Student) at [email protected].
University of Calgary
The SEAMLESS Study: SmartphonE App-based MindfuLnEss intervention for English and French-speaking cancer SurvivorS study aims to investigate the effectiveness of a smartphone app-based mindfulness intervention for patients with cancer who have completed their treatment.
Previous research assessing this mindfulness intervention delivered in person found that it reduces distress and improves quality of life in people living with cancer. Anyone who has completed their primary cancer treatments and has an interest in practicing mindfulness would be a great fit to participate in this study. Interested participants would be required to practice 20-30 minutes of mindfulness per day for four weeks via a mobile app.
Click here to learn more and sign up! (Deadline: March 2024)
Canadian Cancer Survivor Network
The Canadian Cancer Survivor Network is welcoming all patients who have experienced endometrial cancer, and their caregivers, to provide their input in this survey.
The survey results will be used to inform a submission to CADTH and INESSS. The submission will provide the very important lived experience of the patient, and caregiver, and the burden of the disease on their daily lives.
If you want your voice heard please take 10 minutes to fill out the survey by clicking below.
Canadian Virtual Hospice
If you haven’t yet had a moment to share your thoughts on grief, we would love to hear from you. Your perspective will inform future work by our partner, the Canadian Grief Alliance (CGA) to help grieving Canadians access the support they need, and equip those around them with the knowledge and tools to help.
The survey should take no more than 10 minutes to complete and your responses are anonymous and confidential.
Click here to take the survey! (Deadline: December 14, 2023)
Colorectal Cancer Canada
What was your experience with biomarker testing? Colorectal Cancer Canada is inviting Canadian adults (18+) who have undergone treatment for cancer or who are undergoing treatment to participate in its “Patients and Caregivers Experiences and Knowledge with Biomarker Testing in Canada” survey. The purpose of this study is to better understand patient experiences in order to improve quality of and access to biomarker testing in Canada.
Note: This survey can be completed by the patient and/or by the caregiver on behalf of the patient.
To participate, click here: https://bit.ly/3XlYJW8. (It should only take 15-20 minutes of your time.)
Concordia University
This study will help the researchers better understand patients’ and parents’ pain experiences and needs before and after surgery during childhood cancer treatment.
Specifically, they are seeking youth (13-18 years), young adults (19-25 years) or parents of youth who underwent a painful surgery during childhood cancer treatment and would be interested in contributing to this study as patient and parent partners.
Dalhousie University & Emily Drake
Memorial University
The study findings will help understand the characteristics, changes, issues or opportunities in social as well as workplace interactions and conditions of people diagnosed with cancer.
Email [email protected] to learn more!
University of Ottawa
Queering Cancer
After our first three years we’re taking a beat to see how we are doing!
We just launched our evaluation project and we’ll be talking to patients, healthcare professionals and other community cancer organizations. An important part of this process is our SURVEY!
Please help us by completing the survey and pass it along to anyone who has engaged with Queering Cancer through the website, our social media platforms or in person. We’d like as much information as possible so that means a lot of responses.
Anecdotally we know we have already made a difference. We’re hoping this evaluation provides us with some data to prove it, and to help us plan for the future.
Thank you for your support!
